Chief Minister Hemant Soren has declared the state government’s commitment to managing sickle cell disease, aiming to provide improved care and quality of life for affected individuals. He believes a broad approach is essential, considering the disease’s impact on both patients and their families. During a UNICEF event on Sickle Cell Awareness Day, he engaged with young people living with the condition, underscoring the need for public awareness to improve understanding. He believes collective action is vital for controlling the disease.
He emphasized the importance of early detection through increased screening to ensure timely treatment. He pointed out that many individuals are unaware of their condition, potentially leading to the transmission of the disease to subsequent generations. He advocated for expanded screening programs coupled with counseling and access to necessary medical support. The government also intends to implement newborn screening to facilitate early intervention and treatment. Collaboration between the health department, UNICEF, and other organizations is ongoing. These initiatives also include efforts to create health profiles to better manage and treat various diseases. The ultimate goal is to ensure the health and well-being of future generations.
He directed the health department to establish strong systems for the testing and treatment of sickle cell patients, including ensuring the availability of blood and medications. He also highlighted the significance of health counselors in genetic disease screening and counseling, advocating for proper training and resources for them. He also engaged in discussions with patients, gathering insights into their experiences, issues, and medical needs. He encouraged them, assuring them of government support and solutions to their challenges, including educational disruptions.